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AS Support Group Online

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This section is for parents. We will discuss dealing with the professionals, the lack of help or  help or advice that we do get. Please email us your experiences dealing with professionals and experts you have come across in this field, to the normal address: assupportgroup@bluebottle.com Subject heading Parents/Carers Experiences. We will publish you're experiences if you are willing to let us or and if it's not got any illegal issues on it.

 

We have one parents view already. Here is an article by Sharon Andrews, parent of Jack. She tells us of her experiences. Click here

As a parent who has been struggling with the difficulties my AS daughter has been creating over the last 7 years I would be interested to hear if other parents have had any more positive or help from the relative authoraties than I have.Our story so far goes this way 5 years before a diagnosis of AS made Then no advice how to deal with the problems.Schools and colleges a total desaster due to inappropriate behavior caused by the AS,obvious to us as it had been repeated on at least 5 occasions but the proffessionals do not agree.Again we find ourselves in the same position again after another college problem.This college has been the best yet but it pulled the plug for the same reason, inappropriate behavior.Although I understand there reasons I feel that with a proper enforced phychiatric backup at this particular college it could have worked.Anyway we find ourselves back to square one with the police breathing down our necks and no solution being forthcoming from the helping services.Is there anybody else out there who has had any similar experiences I would be interested to hear of any advice anybody can give me.  JOHN (Emma's Dad)

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My 9 year old daughter, Erin only got diagnosed last summer.  For years I have been looking for answers, she was diagnosed with ADHD, primarily ADD 2 years ago.  Last year was a disaster.  Her teacher was insensitive and I found out through other parents how much my daughter was bullied last year.  This year I wont stand for anything.  We have had a couple of incidents this year.  One particular girl has been mean to my daughter since school started.  A few weeks ago, she told my daughter that she was going to beat her up.  I called the principal to inform him of the threat, I also let him know how badly my daughter was bullied last year and I was not going to stand for it this year.  Anyway, the girl and her sidekick were called into the principals office and their parents were called.  Then on Valentine's Day the girl's best friend sent my daughter a Valentine that said, "I am still your enemy, watch out".  I brought the card to the principal and said I wanted the girls parents to see the card, I also asked the principal to have a discussion with the whole class about bullying and what behavior was not going to be tolerated.  The girl wrote an apology letter and so far, my daughter has been left alone.  That was 2 weeks ago.  
 
I would appreciate any feedback regarding our situation.  I am also curious if anyone has had to deal with bathroom accidents in an older child.  My daughter gets so wrapped up in her gameboy and TV that she has accidents.  This was happening a lot but now we have made a deal with her that she will get something she wants if she can go a week without having an accident.  IT is now 3 days and no accidents.  Does anyone have any advice?
 
I would appreciate any advise from other parents.  Also, I live in Central New York, if anyone knows of local organizations that deal with AS, I would love to know.  I also would like to know if there are any summer camps that specialize in AS that are in my area.
 
Thank you,
 
Pat

My son was born weighing only one pound, at 28 weeks. I was so strong for him through the first couple of years of physical trials due to prematurity.. Then I started seeing behavior problems. He is smart, funny, and pretty heathly now. Somehow when I was preparing myself for possible cerebral palsy and mental retardation, I failed to consider a smart child with behavior and social problems. I went to doctors and psychologists, starting at age 2, looking for an explaination. I even asked about Autism, specifically Aspergers. It was not until he was 9 that I finally got a diagnosis. But still I have had little help from professionals. I think they just don't know what to do. He has had adverse reactions to several medications. The have him on Abilify now, but it has little effect. He also has ADHD, but has pardoxal reponses to stimulants, so we're still experimenting with other medications. He has been unable to reach his true potential because of lack of properly trained adults in his life. I am referring not only to the public school he attends and his doctors, but also myself. He is now 12 and has started puberty. He is often unmanagable. I am simply exhausted from fighting a never ending no win battle. A few years ago I started looking on the internet at boarding schools for kids with AS. I never looked very deep because of my own selfishness. I would miss him tremendously and I would have to acknowledge that I’ve failed to meet his needs. I want what is best for my son. I want him to be a happy person and grow to be a successful adult. The way things are going, this will not happen. I feel sad and ashamed to even admit this. I would only allow him to leave if it was a great school and he would be better for it. The schools are all so far away. And the ones I like best don't offer financial aide. If anyone out there has any advice, especially if you have been through this, please....

Her email is georganne8@verizon.net

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